 Welcome
to the ACT ME/CFS Society
We provide support and information for people affected by Myalgic
Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS) and
Fibromyalgia Syndrome (FMS) in the Canberra region.
The ACT ME/CFS
Society provides support services, such as monthly support group meetings
and a self help course. We provide information about ME/CFS/FMS
and related illnesses to members, medical practitioners and the public.
We also raise funds for research into ME/CFS and hold events to raise
awareness in the ACT region.
Highly
Recommended
We highly recommend
this short (around
four minutes) video to anyone interested in ME/CFS.
Latest
News
National Pain Summit
The first National Pain Summit was held in Canberra during March and was opened by
Health Minister Nicola Roxon. Read how chronic pain is undertreated and how healthcare
Practitioners and industry groups are calling for chronic pain to be recognised as a disease.
http://www.abc.net.au/news/stories/2010/03/11/2843354.htm
Funding Success
The Society has just been notified that it has been successful in receiving a Grant from ACT Health for continued funding of the Support Worker. The Society now needs to recruit members for the Management Committee if we are to make the best use of the Grant money and implement the proposals outlined in the Grant Application.
Next
Support Group Meeting
Support Group meetings are usually held on the first Tuesday of the month.
Please note the changed time and venue for the next meeting which will be held at the Independent Living Centre.
The Independent Living Centre provides the community with assistive technology to help people maximise their independence and their ability to manage everyday tasks whether in the home, workplace, or out in the community.
Date: Tuesday 3 August 2010
Time: 2:00 pm to 3:00 pm
Venue: Independent Living Centre
Address: 24 Parkinson Street, Weston
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- Wheel chair accessible
- Free parking
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A map showing the location of the Independent Living Centre can be accessed at
http://www.ilcaustralia.org/home/act.asp
For more information email or phone 6290 1984.
ACT Chronic Conditions Alliance - formally FOCCUS
New venue
Free informative sessions
Free parking
Wheel chair accessible
Everyone is welcome
Topic: Medication Issues
Date: Wednesday 11 August 2010
Time: 7:00 pm to 8:30 pm
New Venue: Woden Community Service Rooms
Address: 26 Corinna Street Woden – immediately behind the Discount Pharmacy
For more information email or phone 6290 1984.
Download the ACT Chronic Conditions Alliance PROGRAM
Forum
The Society
now has a space on the NSW Forum pages of its very own. Follow this
link to connect online with other people with ME/CFS & FMS in
the Canberra Region. Register now thanks to the ME/CFS Society
of NSW.
Videos
on ME/CFS
The SA Society
has a nifty Multimedia
page on their site with a lot of good material, including a link
to a Youtube video which contains a selection of quotes from scientific
journals on the medical evidence for ME/CFS.
Doctors'
Guidelines for ME/CFS
2005/2006
- Overview of the Canadian Consensus clinical guidelines for ME/CFS
and FMS
Courtesy of the Canadian ME/FM Action Network.
2004
- ME/CFS Guidelines for GPs and Psychiatrists
Developed by South Australian Department of Health in collaboration
with medical professionals and the SA ME/CFS Society.
Newly
diagnosed with a condition?
The Society strongly
recommends you read:
Advice
to a New Patient
By Bruce Campbell
CFIDS and Fibromyalgia expert Bruce Campbell talks about the most important
things to remember in coping with Chronic Fatigue Syndrome or fibromyalgia.
Family
and Friends
Coping
Information for family and friends by Bruce
Campbell
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