 Welcome to the ACT ME/CFS Society!
We provide support, information and advocacy for people affected by Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS) and/or Fibromyalgia Syndrome (FMS) in the Canberra region.
The ACT ME/CFS Society provides support services, such as monthly support group meetings and a self help course. We provide information about ME/CFS/FMS and related illnesses to members, medical practitioners and the public. We also raise funds for research into ME/CFS and hold events to raise awareness in the ACT region.
Latest News:
Next Support Group Meeting (Tuesday 5 August 2008) – I Remember Me viewing
The next support group meeting will be held on 5 August 2008. Bring your lunch at 12.30 pm so there is time for a chat and to meet other people with ME/CFS & FMS before the presentation from our guest speaker at 1 pm. The topic is Beyond Maturity Blues. Peer Educators funded by ACT Health will discuss how depression affects many people in all age groups, how to recognise the signs and how to seek help.
Phone or email Gwen at SHOUT on 6290 1984 for more information.
The Next Self-Help Course
The ACT ME/CFS & FMS Society runs a course that is designed to help you better understand the illnesses and gives you the strategies to manage your health more effectively. The Self-Help Course is an eight week program, with a two hour session per week and will begin in September 2008. Fees apply. For more information or to register, please contact SHOUT on 6290-1984 or email us at admin@mecfscanberra.org.au.
Fundraising Cinema Event - Sunday 31 August
On Sunday 31 August 2008 the Society will hold a special screening of the award winning ME/CFS documentary, I Remember Me, by Kim A. Snyder (see the film's press kit for more details) at Dendy Cinemas, Civic. Pre-screening drinks and canapes will kick start the afternoon event (time to be announced). Tickets are $25pp, available through SHOUT - call 02 6290 1984. Purchase before
22 August to secure your ticket. Proceeds will go towards ME/CFS research and the ACT ME/CFS Society.
ME/CFS on Channel 10 and the South Australian Society Website – On Thursday, the 15th of May, ME/CFS patient Imogen Newhouse was on Channel 10's weekday morning TV program, 9am with David and Kim. The interview was both informative and interesting, goes for 12 minutes, and is well worth a watch. Channel 10 has given the SA Society permission to have the 12-minute interview on their website - check it out here.
Forum
The Society now has a space on the NSW Forum pages of its very own. Follow this link to connect online with other people with ME/CFS & FMS in the Canberra Region. Register now thanks to the ME/CFS Society of NSW.
Videos on ME/CFS
The SA Society has a nifty Multimedia page on their site with a lot of good material, including a link to a Youtube video which contains a selection of quotes from scientific journals on the medical evidence for ME/CFS.
Doctors' Guidelines for ME/CFS
2005/2006 - Overview of the Canadian Consensus clinical guidelines for ME/CFS and FMS
Courtesy of the Canadian ME/FM Action Network.
2004 - ME/CFS Guidelines for GPs and Psychiatrists
Developed by South Australian Department of Health in collaboration with medical professionals and the SA ME/CFS Society.
Newly
diagnosed with a condition?
The Society strongly recommends you read:
Advice
to a New Patient
By Bruce Campbell
CFIDS and Fibromyalgia expert Bruce Campbell talks about the most important things to remember in coping with Chronic Fatigue Syndrome or fibromyalgia.
Family and Friends
Coping Information for family and friends by Bruce Campbell
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